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Copyright and Registered Trademark Uses

IG © 2023+ Gabrielle dos Santos Leandro. Package mcaretech.stroke.vbhc#1.0.0 based on FHIR 4.0.1. Generated 2026-05-30 Links: Table of Contents | QA Report ( src )
The Stroke Care Line was represented using BPMN (Business Process Model and Notation) by the Camunda® platform, considering the case study of stroke care in Joinville, Brazil. A data dictionary was elaborated considering the Stroke-CP represented and the ICHOM Reference Guide [4]. Finally, the variables were mapped considering the available FHIR resources. The following technologies were used for the IG development: Ruby, Java® JDK v.11, Node.js®, Jekyll, Docker®, Visual Studio Code®, GoFSH®, Sushi®, FHIR Shorthand® and IG Publishing®. The documentation was stored on GitHub® and a subdomain was allocated for access. ( src )
hl7.fhir.us.hai: Healthcare Associated Infection Implementation Guide ®© HL7 | CC0 ( src )
Figure 1 – Representation and relationship of the phases (a) Pre-Hospital Phase, (b) Stroke Acute Hospital Phase, and (c) Follow-up and Rehabilitation Phase in the clinical pathway for stroke patients. ( src )
!!Este material contém conteúdo do <a href=\"http://loinc.org\">LOINC</a>. LOINC é copyright © 1995-2020, Regenstrief Institute, Inc. e o Logical Observation Identifiers Names and Codes (LOINC) Committee e está disponível sem custo sob a <a href=\"http://loinc.org/license\">licença</a>. LOINC® é uma marca registada dos Estados Unidos da América do Regenstrief Institute, Inc. Show Usage * LOINC: GenderIdentityExtension, GenderIdentityVS, Patient/example-strokepatient and PatientReportedBaseline ( src )
FHIR Implementation Guide for Stroke - Compilação de desenvolvimento local (v1.0.0) construída pelas ferramentas de compilação FHIR (HL7® FHIR® Standard). Veja o Diretório de versões publicadas ( src )
This material derives from the HL7 Terminology (THO). THO is copyright ©1989+ Health Level Seven International and is made available under the CC0 designation. For more licensing information see: https://terminology.hl7.org/license.html Show Usage * contactRole2: StrokePatient * identifierType: StrokeOrganization, StrokePatient and StrokePractitioner * degreeLicenseCertificate: Practitioner/example-strokepractitioner * expandedYes-NoIndicator: ClinicalResponseAnnualUpdate, ClinicalResponseBaseline... Show 37 more , ClinicalResponseDischargeOrSevenDays, ClinicalResponseNinetyDays, Hemicraniectomy, NoYesUnknownVS, Observation/ExampleHemicraniectomy, Observation/ExamplePriorAtrialFibrillation, Observation/ExamplePriorDiabetesMellitus, Observation/ExamplePriorHyperlipidemia, Observation/ExamplePriorHypertension, Observation/ExamplePriorIschemicHeartDisease, Observation/ExamplePriorMyocardialInfarction, Observation/ExamplePriorStrokeExclTIA, Observation/ExamplePriorTIA, Observation/ExampleProcoagulantReversal, Observation/ExampleRehabIN, Observation/ExampleRehabOUT, Observation/ExampleStrokeRecur, Observation/ExampleSympIntracranialHemorrhage, Observation/ExampleThrombectomy, Observation/ExampleThrombolytic, PatientReportedDischargeOrSevenDays, PatientReportedNinetyDays, PriorAtrialFibrillation, PriorDiabetesMellitus, PriorHyperlipidemia, PriorHypertension, PriorIschemicHeartDisease, PriorMyocardialInfarction, PriorStrokeExclTIA, PriorTIA, ProcoagulantReversal, RehabIN, RehabOUT, StrokeRecur, SympIntracranialHemorrhage, Thrombectomy and Thrombolytic * Ethnicity: EthnicityExtension, Patient/example-strokepatient and PatientReportedBaseline * MaritalStatus: Patient/example-strokepatient and StrokePatient * NullFlavor: StrokePatient * Race: Patient/example-strokepatient, PatientReportedBaseline and RaceExtension ( src )

External References

Type	Reference	Content
web	m-caretech.com.br	IG © 2023+ Gabrielle dos Santos Leandro . Package mcaretech.stroke.vbhc#1.0.0 based on FHIR 4.0.1 . Generated 2026-05-30 Links: Table of Contents \| QA Report
web	www.ichom.org	The International Consortium for Health Outcomes Measurement (ICHOM) aims to empower value-based healthcare by defining globally a Patient-Centered Health Outcome Measure Sets, which involve considerations of outcomes reported by healthcare professionals as well as patients, in order to promote the adoption, reporting, and benchmarking of these measures on a global scale, with the goal of generating better health outcomes for all involved. So far, Patient-Centered Health Outcome Measure Sets have been defined for 45 different clinical conditions and specific patient populations through the gathering of global teams of patient advocates, healthcare professionals, and researchers, representing more than 50% of the global disease burden, as described on this page . To facilitate the adoption and implementation of these ICHOM Patient-Centered Health Outcome Measure Sets in healthcare, health information technology systems need them to be published in an interoperable form, and in a machine-readable format based on open standards. This will facilitate the semantically interoperable collection of the necessary measurements along the patient care pathway, as well as the subsequent reporting of outcomes based on these measurements. With this goal, ICHOM created the Patient-Centered Health Outcome Measure Set for Stroke. It is believed that the international reach of ICHOM's standard sets will allow their use, adoption, and global implementation in clinical practice.
web	www.ichom.org	The International Consortium for Health Outcomes Measurement (ICHOM) aims to empower value-based healthcare by defining globally a Patient-Centered Health Outcome Measure Sets, which involve considerations of outcomes reported by healthcare professionals as well as patients, in order to promote the adoption, reporting, and benchmarking of these measures on a global scale, with the goal of generating better health outcomes for all involved. So far, Patient-Centered Health Outcome Measure Sets have been defined for 45 different clinical conditions and specific patient populations through the gathering of global teams of patient advocates, healthcare professionals, and researchers, representing more than 50% of the global disease burden, as described on this page . To facilitate the adoption and implementation of these ICHOM Patient-Centered Health Outcome Measure Sets in healthcare, health information technology systems need them to be published in an interoperable form, and in a machine-readable format based on open standards. This will facilitate the semantically interoperable collection of the necessary measurements along the patient care pathway, as well as the subsequent reporting of outcomes based on these measurements. With this goal, ICHOM created the Patient-Centered Health Outcome Measure Set for Stroke. It is believed that the international reach of ICHOM's standard sets will allow their use, adoption, and global implementation in clinical practice.
web	molic-avc.gabriellesantosleandro.com	This Implementation Guide in the knowledge domain focuses on representing the same variables from the Patient-Centered Health Outcome Measure Set for Stroke in two different ways: - 1) as FHIR Questionnaires for patient-reported outcomes and clinically reported outcomes, and - 2) as FHIR Profiles for clinically reported outcomes. Moreover, implementers are afforded the flexibility to choose between implementing the questionnaires, the profiles, or both, based on their specific needs.
web	molic-avc.gabriellesantosleandro.com	This Implementation Guide in the knowledge domain focuses on representing the same variables from the Patient-Centered Health Outcome Measure Set for Stroke in two different ways: - 1) as FHIR Questionnaires for patient-reported outcomes and clinically reported outcomes, and - 2) as FHIR Profiles for clinically reported outcomes. Moreover, implementers are afforded the flexibility to choose between implementing the questionnaires, the profiles, or both, based on their specific needs.
web	molic-avc.gabriellesantosleandro.com	The Questionnaires in this FHIR IG are organized differently from the ICHOM Reference Guide and Data Dictionary, and this is due to different emphases or intended uses. The Reference Guide and Data Dictionary are designed to describe all data elements included in the set, so they are organized by data type or variable. In contrast, this FHIR IG is intended to facilitate the collection of data elements. Therefore, it is organized based on the timing of patient health data collection during their care journey; for example, at 'baseline,' at '1-year follow-up,' and based on the data source (clinical or patient-reported). Despite this difference in organization, the data elements in the FHIR IG and the ICHOM Reference Guide and Data Dictionary are completely aligned. The questionnaires have been divided into two major groups: Patient-reported questionnaires with data collection at the following time points: baseline, discharge or 7 days, and 90 days; and Clinician-reported questionnaires with data collection at the following time points: baseline, discharge or 7 days, 90 days, and annual update, as illustrated in Figure 1.
web	molic-avc.gabriellesantosleandro.com	The Profiles adhere to the ICHOM reference guide and data dictionary organization, as well as to the Profiles of the Brazilian National Data Network. Each variable is mapped to a singular FHIR resource, whereas multiple variables may be mapped to the same FHIR resource. The mappings themselves are conveyed using a FHIR profile, as shown in Figure 2.
web	189.28.128.100	Resources and Tools Used - Clinical Pathway for Cerebrovascular Accident (CVA) in adults. - Global Stroke Guidelines and Action Plan: A Road Map for Quality Stroke Care. - ICHOM Stroke Measure Set and Data Dictionary. - FHIR Resources v5.0.0 - FHIR IG for ICHOM Patient Centered Outcomes Measure Set for Breast Cancer. - FHIR Profiles of the Brazilian National Health Data Network.
web	www.world-stroke.org	Resources and Tools Used - Clinical Pathway for Cerebrovascular Accident (CVA) in adults. - Global Stroke Guidelines and Action Plan: A Road Map for Quality Stroke Care. - ICHOM Stroke Measure Set and Data Dictionary. - FHIR Resources v5.0.0 - FHIR IG for ICHOM Patient Centered Outcomes Measure Set for Breast Cancer. - FHIR Profiles of the Brazilian National Health Data Network.
web	molic-avc.gabriellesantosleandro.com	This FHIR Implementation Guide is organized in the following menus: - Home : Provides a brief introduction to this Implementation Guide. - Stroke-CP : Shows the representation of the Stroke Clinical Pathway in BPMN, covering the Pre-Hospital, Hospital, and Rehabilitation phases. - Data-Dictionary : Displays the data dictionary of this study considering the data from ICHOM and the process. - FHIR : Displays an overview of FHIR, Clinical Applicability, Resources, Profiling, Terminologies, and Useful Links. - ICHOM : Discusses the context of ICHOM with the Patient-Centered Health Outcome Measure Set for Stroke. - Artifacts : Lists all Resource Profiles, Extension Definitions, ValueSets, and Examples of this Implementation Guide. - Examples : Lists all the Examples in this Implementation Guide under the 'Artifacts' menu. - Downloads : This menu allows you to download the elements used in this Implementation Guide. - Security : Addresses some security issues of this Implementation Guide.
web	molic-avc.gabriellesantosleandro.com	This FHIR Implementation Guide is organized in the following menus: - Home : Provides a brief introduction to this Implementation Guide. - Stroke-CP : Shows the representation of the Stroke Clinical Pathway in BPMN, covering the Pre-Hospital, Hospital, and Rehabilitation phases. - Data-Dictionary : Displays the data dictionary of this study considering the data from ICHOM and the process. - FHIR : Displays an overview of FHIR, Clinical Applicability, Resources, Profiling, Terminologies, and Useful Links. - ICHOM : Discusses the context of ICHOM with the Patient-Centered Health Outcome Measure Set for Stroke. - Artifacts : Lists all Resource Profiles, Extension Definitions, ValueSets, and Examples of this Implementation Guide. - Examples : Lists all the Examples in this Implementation Guide under the 'Artifacts' menu. - Downloads : This menu allows you to download the elements used in this Implementation Guide. - Security : Addresses some security issues of this Implementation Guide.
web	molic-avc.gabriellesantosleandro.com	This FHIR Implementation Guide is organized in the following menus: - Home : Provides a brief introduction to this Implementation Guide. - Stroke-CP : Shows the representation of the Stroke Clinical Pathway in BPMN, covering the Pre-Hospital, Hospital, and Rehabilitation phases. - Data-Dictionary : Displays the data dictionary of this study considering the data from ICHOM and the process. - FHIR : Displays an overview of FHIR, Clinical Applicability, Resources, Profiling, Terminologies, and Useful Links. - ICHOM : Discusses the context of ICHOM with the Patient-Centered Health Outcome Measure Set for Stroke. - Artifacts : Lists all Resource Profiles, Extension Definitions, ValueSets, and Examples of this Implementation Guide. - Examples : Lists all the Examples in this Implementation Guide under the 'Artifacts' menu. - Downloads : This menu allows you to download the elements used in this Implementation Guide. - Security : Addresses some security issues of this Implementation Guide.
web	molic-avc.gabriellesantosleandro.com	This FHIR Implementation Guide is organized in the following menus: - Home : Provides a brief introduction to this Implementation Guide. - Stroke-CP : Shows the representation of the Stroke Clinical Pathway in BPMN, covering the Pre-Hospital, Hospital, and Rehabilitation phases. - Data-Dictionary : Displays the data dictionary of this study considering the data from ICHOM and the process. - FHIR : Displays an overview of FHIR, Clinical Applicability, Resources, Profiling, Terminologies, and Useful Links. - ICHOM : Discusses the context of ICHOM with the Patient-Centered Health Outcome Measure Set for Stroke. - Artifacts : Lists all Resource Profiles, Extension Definitions, ValueSets, and Examples of this Implementation Guide. - Examples : Lists all the Examples in this Implementation Guide under the 'Artifacts' menu. - Downloads : This menu allows you to download the elements used in this Implementation Guide. - Security : Addresses some security issues of this Implementation Guide.
web	molic-avc.gabriellesantosleandro.com	This FHIR Implementation Guide is organized in the following menus: - Home : Provides a brief introduction to this Implementation Guide. - Stroke-CP : Shows the representation of the Stroke Clinical Pathway in BPMN, covering the Pre-Hospital, Hospital, and Rehabilitation phases. - Data-Dictionary : Displays the data dictionary of this study considering the data from ICHOM and the process. - FHIR : Displays an overview of FHIR, Clinical Applicability, Resources, Profiling, Terminologies, and Useful Links. - ICHOM : Discusses the context of ICHOM with the Patient-Centered Health Outcome Measure Set for Stroke. - Artifacts : Lists all Resource Profiles, Extension Definitions, ValueSets, and Examples of this Implementation Guide. - Examples : Lists all the Examples in this Implementation Guide under the 'Artifacts' menu. - Downloads : This menu allows you to download the elements used in this Implementation Guide. - Security : Addresses some security issues of this Implementation Guide.
web	molic-avc.gabriellesantosleandro.com	This FHIR Implementation Guide is organized in the following menus: - Home : Provides a brief introduction to this Implementation Guide. - Stroke-CP : Shows the representation of the Stroke Clinical Pathway in BPMN, covering the Pre-Hospital, Hospital, and Rehabilitation phases. - Data-Dictionary : Displays the data dictionary of this study considering the data from ICHOM and the process. - FHIR : Displays an overview of FHIR, Clinical Applicability, Resources, Profiling, Terminologies, and Useful Links. - ICHOM : Discusses the context of ICHOM with the Patient-Centered Health Outcome Measure Set for Stroke. - Artifacts : Lists all Resource Profiles, Extension Definitions, ValueSets, and Examples of this Implementation Guide. - Examples : Lists all the Examples in this Implementation Guide under the 'Artifacts' menu. - Downloads : This menu allows you to download the elements used in this Implementation Guide. - Security : Addresses some security issues of this Implementation Guide.
web	molic-avc.gabriellesantosleandro.com	This FHIR Implementation Guide is organized in the following menus: - Home : Provides a brief introduction to this Implementation Guide. - Stroke-CP : Shows the representation of the Stroke Clinical Pathway in BPMN, covering the Pre-Hospital, Hospital, and Rehabilitation phases. - Data-Dictionary : Displays the data dictionary of this study considering the data from ICHOM and the process. - FHIR : Displays an overview of FHIR, Clinical Applicability, Resources, Profiling, Terminologies, and Useful Links. - ICHOM : Discusses the context of ICHOM with the Patient-Centered Health Outcome Measure Set for Stroke. - Artifacts : Lists all Resource Profiles, Extension Definitions, ValueSets, and Examples of this Implementation Guide. - Examples : Lists all the Examples in this Implementation Guide under the 'Artifacts' menu. - Downloads : This menu allows you to download the elements used in this Implementation Guide. - Security : Addresses some security issues of this Implementation Guide.
web	molic-avc.gabriellesantosleandro.com	This FHIR Implementation Guide is organized in the following menus: - Home : Provides a brief introduction to this Implementation Guide. - Stroke-CP : Shows the representation of the Stroke Clinical Pathway in BPMN, covering the Pre-Hospital, Hospital, and Rehabilitation phases. - Data-Dictionary : Displays the data dictionary of this study considering the data from ICHOM and the process. - FHIR : Displays an overview of FHIR, Clinical Applicability, Resources, Profiling, Terminologies, and Useful Links. - ICHOM : Discusses the context of ICHOM with the Patient-Centered Health Outcome Measure Set for Stroke. - Artifacts : Lists all Resource Profiles, Extension Definitions, ValueSets, and Examples of this Implementation Guide. - Examples : Lists all the Examples in this Implementation Guide under the 'Artifacts' menu. - Downloads : This menu allows you to download the elements used in this Implementation Guide. - Security : Addresses some security issues of this Implementation Guide.
web	molic-avc.gabriellesantosleandro.com	This FHIR Implementation Guide is organized in the following menus: - Home : Provides a brief introduction to this Implementation Guide. - Stroke-CP : Shows the representation of the Stroke Clinical Pathway in BPMN, covering the Pre-Hospital, Hospital, and Rehabilitation phases. - Data-Dictionary : Displays the data dictionary of this study considering the data from ICHOM and the process. - FHIR : Displays an overview of FHIR, Clinical Applicability, Resources, Profiling, Terminologies, and Useful Links. - ICHOM : Discusses the context of ICHOM with the Patient-Centered Health Outcome Measure Set for Stroke. - Artifacts : Lists all Resource Profiles, Extension Definitions, ValueSets, and Examples of this Implementation Guide. - Examples : Lists all the Examples in this Implementation Guide under the 'Artifacts' menu. - Downloads : This menu allows you to download the elements used in this Implementation Guide. - Security : Addresses some security issues of this Implementation Guide.
web	www.gabriellesantosleandro.com	This work would not be possible without: * Gabrielle dos Santos Leandro * Ricardo João Cruz-Correia * Claudia Maria Cabral Moro * Eduardo Alves Portela Santos
web	www.pucpr.br	* Fundação Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES) - Postgraduate Study Scholarship Tax Mode for Doctoral Funding in the Programa de Pós-Graduação em Tecnologias em Saúde - PUCPR during the period from 2020 to 2024.

Type

Reference

Content

web

m-caretech.com.br

IG © 2023+ Gabrielle dos Santos Leandro . Package mcaretech.stroke.vbhc#1.0.0 based on FHIR 4.0.1 . Generated 2026-05-30
Links: Table of Contents | QA Report

web

www.ichom.org

The International Consortium for Health Outcomes Measurement (ICHOM) aims to empower value-based healthcare by defining globally a Patient-Centered Health Outcome Measure Sets, which involve considerations of outcomes reported by healthcare professionals as well as patients, in order to promote the adoption, reporting, and benchmarking of these measures on a global scale, with the goal of generating better health outcomes for all involved.
So far, Patient-Centered Health Outcome Measure Sets have been defined for 45 different clinical conditions and specific patient populations through the gathering of global teams of patient advocates, healthcare professionals, and researchers, representing more than 50% of the global disease burden, as described on this page .
To facilitate the adoption and implementation of these ICHOM Patient-Centered Health Outcome Measure Sets in healthcare, health information technology systems need them to be published in an interoperable form, and in a machine-readable format based on open standards. This will facilitate the semantically interoperable collection of the necessary measurements along the patient care pathway, as well as the subsequent reporting of outcomes based on these measurements. With this goal, ICHOM created the Patient-Centered Health Outcome Measure Set for Stroke. It is believed that the international reach of ICHOM's standard sets will allow their use, adoption, and global implementation in clinical practice.

web

www.ichom.org

web

molic-avc.gabriellesantosleandro.com

This Implementation Guide in the knowledge domain focuses on representing the same variables from the Patient-Centered Health Outcome Measure Set for Stroke in two different ways:
- 1) as FHIR Questionnaires for patient-reported outcomes and clinically reported outcomes, and
- 2) as FHIR Profiles for clinically reported outcomes.
Moreover, implementers are afforded the flexibility to choose between implementing the questionnaires, the profiles, or both, based on their specific needs.

web

molic-avc.gabriellesantosleandro.com

web

molic-avc.gabriellesantosleandro.com

The Questionnaires in this FHIR IG are organized differently from the ICHOM Reference Guide and Data Dictionary, and this is due to different emphases or intended uses. The Reference Guide and Data Dictionary are designed to describe all data elements included in the set, so they are organized by data type or variable. In contrast, this FHIR IG is intended to facilitate the collection of data elements. Therefore, it is organized based on the timing of patient health data collection during their care journey; for example, at 'baseline,' at '1-year follow-up,' and based on the data source (clinical or patient-reported). Despite this difference in organization, the data elements in the FHIR IG and the ICHOM Reference Guide and Data Dictionary are completely aligned. The questionnaires have been divided into two major groups: Patient-reported questionnaires with data collection at the following time points: baseline, discharge or 7 days, and 90 days; and Clinician-reported questionnaires with data collection at the following time points: baseline, discharge or 7 days, 90 days, and annual update, as illustrated in Figure 1.

web

molic-avc.gabriellesantosleandro.com

The Profiles adhere to the ICHOM reference guide and data dictionary organization, as well as to the Profiles of the Brazilian National Data Network. Each variable is mapped to a singular FHIR resource, whereas multiple variables may be mapped to the same FHIR resource. The mappings themselves are conveyed using a FHIR profile, as shown in Figure 2.

web

189.28.128.100

Resources and Tools Used
- Clinical Pathway for Cerebrovascular Accident (CVA) in adults.
- Global Stroke Guidelines and Action Plan: A Road Map for Quality Stroke Care.
- ICHOM Stroke Measure Set and Data Dictionary.
- FHIR Resources v5.0.0
- FHIR IG for ICHOM Patient Centered Outcomes Measure Set for Breast Cancer.
- FHIR Profiles of the Brazilian National Health Data Network.

web

www.world-stroke.org

web

molic-avc.gabriellesantosleandro.com

This FHIR Implementation Guide is organized in the following menus:
- Home : Provides a brief introduction to this Implementation Guide.
- Stroke-CP : Shows the representation of the Stroke Clinical Pathway in BPMN, covering the Pre-Hospital, Hospital, and Rehabilitation phases.
- Data-Dictionary : Displays the data dictionary of this study considering the data from ICHOM and the process.
- FHIR : Displays an overview of FHIR, Clinical Applicability, Resources, Profiling, Terminologies, and Useful Links.
- ICHOM : Discusses the context of ICHOM with the Patient-Centered Health Outcome Measure Set for Stroke.
- Artifacts : Lists all Resource Profiles, Extension Definitions, ValueSets, and Examples of this Implementation Guide.
- Examples : Lists all the Examples in this Implementation Guide under the 'Artifacts' menu.
- Downloads : This menu allows you to download the elements used in this Implementation Guide.
- Security : Addresses some security issues of this Implementation Guide.

web

molic-avc.gabriellesantosleandro.com

web

molic-avc.gabriellesantosleandro.com

web

molic-avc.gabriellesantosleandro.com

web

molic-avc.gabriellesantosleandro.com

web

molic-avc.gabriellesantosleandro.com

web

molic-avc.gabriellesantosleandro.com

web

molic-avc.gabriellesantosleandro.com

web

molic-avc.gabriellesantosleandro.com

web

www.gabriellesantosleandro.com

This work would not be possible without:
* Gabrielle dos Santos Leandro
* Ricardo João Cruz-Correia
* Claudia Maria Cabral Moro
* Eduardo Alves Portela Santos

web

www.pucpr.br

* Fundação Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES) - Postgraduate Study Scholarship Tax Mode for Doctoral Funding in the Programa de Pós-Graduação em Tecnologias em Saúde - PUCPR during the period from 2020 to 2024.

Internal Images

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