This questionnaire is meant to assess the clinical response in stroke patients at the initial point of assessment, which would be the first doctor’s visit.

This questionnaire is meant to assess the clinical response in stroke patients at the patient discharge or 7 days post admission, whichever comes first.

This questionnaire is meant to assess the clinical response in stroke patients at 90 days post admission.

This questionnaire is meant to assess the clinical response in stroke patients at annual follow-up, from 1 year to 5 years post admission.

This questionnaire is designed to assess the patient-reported response in stroke patients at the initial point of assessment.

This questionnaire is designed to assess the patient-reported response in stroke at the patient discharge or 7 days post admission, whichever comes first.

This questionnaire is designed to assess the patient-reported response in stroke at 90 days post admission.

Indicate which comorbidities the patient is living with.

Indicate how the diagnosis was made.

Indicate the patient’s discharge destination from acute care hospital.

Indicate the duration of the stroke symptoms measured on hospital arrival.

Indicate the estimated stroke severity category by the NIH Stroke Scale (NIHSS).

The Organization Profile encompasses all healthcare institutions related to stroke care, based on the Brazilian National Data Network (RNDS).

Indicate if the patient underwent hemicraniectomy.

Indicate whether there is dedicated stroke rehabilitation during acute care.

Indicate whether there is dedicated stroke rehabilitation during post-acute care, either hospital based or out patient/home based.

Indicate whether the person has ever been diagnosed with atrial fibrillation and flutter.

Indicate if the patient has a documented history of diabetes mellitus (regardless of duration of disease or need for anti-diabetic agents).

Indicate whether the patient has ever been diagnosed with hyperlipidemia.

Indicate whether the patient has a documented history of hypertension, diagnosed and treated with medication and/or diet and/or exercise.

Indicate whether the patient has ever been diagnosed with ischemic heart disease (including myocardial infarction).

Indicate whether the patient has a documented history of myocardial infarction.

Indicate whether the patient was ever diagnosed with a stroke (excluding transient ischemic attacks).

Indicate whether the patient was ever diagnosed with a Transient Ischemic Attacks.

Indicate if the patient received procoagulant reversal therapy.

This profile stores demographics and other administrative information about a patient with stroke, based on the Brazilian National Data Network (RNDS).

This profile encompasses all health professionals involved in the healthcare process and related health services as part of their formal responsibilities, conforming to the standards of the Brazilian National Data Network (RNDS).

Indicate if the patient had a new stroke within 90 days of their first stroke occurrence.

Indicate the patient’s level of consciousness measured on hospital arrival.

Indicate the stroke severity as measured by the NIH Stroke Scale (NIHSS). Report the raw (uncategorized) NIHSS score.

Indicate Stroke Type.

Indicate if the patient developed symptomatic intracerebral hemorrhage after treatment of ischemic stroke with intravenous thrombolysis and/or thrombectomy.

Indicate if the patient underwent thrombectomy.

Indicate if the patient received intravenous thrombolytic therapy.

Extension to capture the patient’s ethnicity which represents their cultural background or heritage.

Extension of the patient’s gender.

Extension that represents the race of a patient.

Valueset that indicate which comorbidities the patient is living with. Select all conditions that apply.

ValueSet that indicates which diagnostic evidence base was used for its realization

ValueSet about discharge destination following acute care hospitalization. What type of place was the patient discharged to?

ValueSet that categorizes the duration of stroke symptoms, considering the time from symptom onset to admission at the reference hospital.

ValueSet that intended to categorize the severity of the stroke based on the National Institutes of Health Stroke Scale (NIHSS).

ValueSet for Gender Identity based on LOINC.

ValueSet indicating whether a patient lived alone prior to a stroke event based on ICHOM terminology.

ValueSet that defines the response values for the PROMIS-10 (Patient-Reported Outcomes Measurement Information System 10-item short form) Questionnaire.

ValueSet that represents the patient’s most recent place of residence after the occurrence of a stroke based on ICHOM code.

ValueSet that represents the patient’s most recent place of residence before the occurrence of a stroke based on ICHOM code.

ValueSet that defines the response values for the Prestroke and Poststroke Functional Status: Ambulation.

ValueSet that defines the response values for the Prestroke and Poststroke Functional Status: Dressing.

ValueSet that defines the response values for the Prestroke and Poststroke Functional Status: Toileting.

ValueSet that defines the response values for the simplified modified Ranking Scale questionnaire.

ValueSet for Smoking Status. A person’s current and past smoking behavior.

ValueSet based on the ICHOM standard that indicates the patient’s state of consciousness as measured upon arrival at the reference hospital.

ValueSet that aims to categorize the stroke type according to the ICHOM standard.

ValueSet with responses Yes, No, and Unknown

CodeSystem that indicate which comorbidities the patient is living with. Select all conditions that apply.

CodeSystem that indicates which diagnostic evidence base was used for its realization

CodeSystem about Discharge destination following acute care hospitalization. What type of place was the patient discharged to?

CodeSystem that categorizes the duration of stroke symptoms, considering the time from symptom onset to admission at the reference hospital.

CodeSystem that intends to categorize the severity of the stroke based on the National Institutes of Health Stroke Scale (NIHSS).

CodeSystem indicating whether a patient lived alone prior to a stroke event based on ICHOM terminology.

CodeSystem that defines the response values for the PROMIS-10 (Patient-Reported Outcomes Measurement Information System 10-item short form) Questionnaire.

CodeSystem that represents the patient’s most recent place of residence after the occurrence of a stroke based on ICHOM code.

CodeSystem that represents the patient’s most recent place of residence before the occurrence of a stroke based on ICHOM code.

CodeSystem that defines the response values for the Prestroke and Poststroke Functional Status.

CodeSystem that defines the response values for the simplified modified Ranking Scale questionnaire (sMRSq).

CodeSystem for Smoking Status. A person’s current and past smoking behavior.

CodeSystem based on the ICHOM standard that indicates the patient’s state of consciousness as measured upon arrival at the reference hospital.

CodeSystem that aims to categorize the stroke type according to the ICHOM standard.

Example of Cardiovascular Comorbidities. Indicate which comorbidities the patient is living with.

Example of Diagnosis Evidence Base. Indicate how the diagnosis was made.

Example of Discharge Destination Following Acute Care Hospitalization. Indicate the patient’s discharge destination from acute care hospital.

Example of Duration of Stroke Symptoms. Indicate the duration of the stroke symptoms measured on hospital arrival.

Example of Estimated Stroke Severity: based on NIHSS Category. Indicate the estimated stroke severity category by the NIH Stroke Scale (NIHSS).

Example of Healthcare Facility related to stroke care, based on the Brazilian National Data Network (RNDS).

Example of Hemicraniectomy. Indicate if the patient underwent hemicraniectomy.

Example of Inpatient Acute Care Rehabilitation. Indicate whether there is dedicated stroke rehabilitation during acute care.

Example of Post Acute Care Rehabilitation. Indicate whether there is dedicated stroke rehabilitation during post-acute care, either hospital based or out patient/home based.

Example of Prior Atrial Fibrillation and Flutter. Indicate whether the person has ever been diagnosed with atrial fibrillation and flutter.

Example of Prior Diabetes Mellitus. Indicate if the patient has a documented history of diabetes mellitus (regardless of duration of disease or need for anti-diabetic agents).

Example of Prior Hyperlipidemia. Indicate whether the patient has ever been diagnosed with hyperlipidemia.

Example of Prior Hypertension. Indicate whether the patient has a documented history of hypertension, diagnosed and treated with medication and/or diet and/or exercise.

Example of Prior Ischemic Heart Disease. Indicate whether the patient has ever been diagnosed with ischemic heart disease (including myocardial infarction).

Example of Prior Myocardial Infarction. Indicate whether the patient has a documented history of myocardial infarction.

Example of Prior Stroke excluding Transient Ischemic Attacks. Indicate whether the patient was ever diagnosed with a stroke (excluding transient ischemic attacks).

Example of Prior Transient Ischemic Attacks. Indicate whether the patient was ever diagnosed with a Transient Ischemic Attacks.

Example of Procoagulant Reversal Therapy. Indicate if the patient received procoagulant reversal therapy.

Example of Stroke Patient. This example presents a profile for stroke patient based on Brazilian RNDS.

This example presents a practitioner profile for stroke attendance based on Brazilian National Data Network.

Example of Stroke Recurrence. Indicate if the patient had a new stroke within 90 days of their first stroke occurrence.

Example of Stroke Severity: Consciousness. Indicate the patient’s level of consciousness measured on hospital arrival.

Example of Stroke Severity: NIHSS Score. Indicate the stroke severity as measured by the NIH Stroke Scale (NIHSS). Report the raw (uncategorized) NIHSS score.

Example of Stroke Type. Indicate Stroke Type.

Example of Symptomatic Intracranial Hemorrhage. Indicate if the patient developed symptomatic intracerebral hemorrhage after treatment of ischemic stroke with intravenous thrombolysis and/or thrombectomy.

Example of Thrombectomy. Indicate if the patient underwent thrombectomy.

Example of Thrombolytic Therapy. Indicate if the patient received intravenous thrombolytic therapy.